Agenda item

Dementia Care

To receive a report on the multi-agency services available for Dementia care in the City.

Minutes:

Louise Barnes (Eldertree), Kate Smith (Memory Matters), Sarah Carlson (UHP), Nicole Quinn (Livewell SW) and Emma Crowther (Interim Head of Commissioning) delivered a presentation on Dementia Care, and discussed-

 

 

a)     Dementia diagnosis were on the rise. It was estimated that by 2040, there would be over 5,000 people in Plymouth with dementia. A half of the population would be affected by dementia at some point in their lifetime;

 

b)    Symptoms of Dementia included memory loss, difficulty concentrating, confusion, and difficulty conducting everyday tasks, among others. There were more than 100 types of dementia;

 

c)     Following diagnosis, patients were automatically referred to the Livewell SW Dementia Advisor Service. There were currently 850 patients, with each reviewed at least twice a year;

 

d)    Memory Matters and Elder Tree were the predominant VCSE organisations in the city who provided Dementia support;

 

e)     Elder Tree supported over 200 people through weekly befriending groups and one to one sessions. There were also support groups for carers to allow ‘breathing space’, peer-support and respite;

 

f)      A significant challenge faced by the VCSE sector was the late-stage of referrals, with most patients presenting with moderate-severe symptoms. This was largely due to delays in attaining a Dementia diagnosis;

 

g)     Memory Matters was the only VCSE organisation in Plymouth with a sole focus on Dementia. Services were designed around peoples ‘lived-experience’, and time-limited funding had been secured from Livewell SW to provide and teach Cognitive Stimulation Therapy;

 

h)    Carer breakdown was a significant challenge, and it was therefore important that support and signposting was given to carers, as well as patients;

 

i)      One in four patients in an acute trust had Dementia. As part of the John’s Campaign, UHP had introduced numerous measures to provide Dementia friendly environments, as well as Dementia-aware care;

 

j)      The Plymouth Partnership Dementia Alliance brought partners across the city together to enable collaborative working, thinking and planning for current and future Dementia needs in the city;

 

k)     System challenges included high demand for services, delays for Dementia diagnosis, carer breakdown, and people waiting too long to seek support or advice;

 

l)      Funding had been attained to provide a pilot ‘waiting-well’ service, allowing patients access to support and advice while awaiting a Dementia diagnosis;

 

m)   While there was good Dementia care provision in Plymouth, funding and dementia diagnosis times were the primary concerns.

 

In response to questions, the board discussed-

 

n)    The role of Community Builders, and the lack of an “older person’s” representative;

 

o)    Partner connections;

 

p)    The development of a Devon Dementia Strategy;

 

q)    The role of the new Community Diagnostic Centre in reducing diagnosis waiting times;

 

r)     Communication of services and support;

 

s)     The recent Healthwatch survey of unpaid carers cross Devon, focussing on carer isolation and wellbeing.

 

The Board agreed-

 

1.     To Recommend to NHS Devon that options be explored to commission a dedicated older people’s Community Builder;

 

2.      To recommend that the Heathwatch Carers survey is shared with Dementia focussed VSCE organisations, to inform carer support;

 

3.     To recommend that a coherent communication strategy is developed for Dementia support;

 

4.     To recommend that Councillors become more aware of Dementia, and the support available;

 

5.     To note the report.

 

Supporting documents: